Type 1 Diabetes

Spending quality time in this page and fulfilling all the requirements and following all the guidelines will make us all manage your child's diabetes and life better -
1. Call 916.426.1902 as soon as possible, during office hours, to make an appointment to see our providers within the first week of discharge.
   b. Bring the complete name & address for your primary care provider doctor, parent/guardian ID, any legal guardian paperwork & insurance information
   c. Bring written records of the blood sugars
   d. Bring all the diabetes supplies - we will verify and put in orders for new supplies.
   e. Bring a list of questions which you need answers for regarding the diabetes management

2. First few days: Every morning at 6:00, call us at 916.426.1902 and use the pager number on the answering machine to page the doctor. Be prepared to give us the previous 24 hours of blood sugars so that we can discuss insulin dose adjustments.

3. Keep a written record (and bring it to your office visits all the time) of your child’s blood sugars, insulin doses, and exercise in a logbook or journal. This will make it easier to learn how your child responds to day-to-day activities.

4. EMERGENCIES: If life threatening call 911 Non emergency but urgent call 916.426.1902, anytime 24/7, and then follow the prompts to page one of our providers, if you feel you need help. This is a free courtesy service (insurance does not pay for this service) to give you access and support; you will always speak to one of our providers and not to a third-party call service. During office hours call the office.

5. Call your child’s school or daycare provider and find out what they will need to support your child in school. Forms are available for you to download on the main page.

6. Learn about CCS—California Children's Services. Your child could be eligible for a special state program that would help you pay for their care until they reach age 21.

7. Social Media:
Type 1 diabetes facebook page
Type 1 Diabetes - Teen and Young adults Facebook page
Type 1 diabetes little kids facebook page
8. Learn about your support team of nurses, dietitians, and social workers—
the PENS team.

9. Call your insurance provider to find out the best way to get supplies (mail order vs. local pharmacy). Keep track of changes in your insurance plans for preferred brands (their “formulary”).

OTHER USEFUL INFORMATION
Quick Reminders: Read this fully Take a picture and keep it on your phone
(Recordatorios rápidos: tome una foto y guárdela en su teléfono)
SCHOOL information from NIH: including 504 C (for parents to learn)
Types of Insulins and Glucagon (Tipos de insulina) Learning about different long and short acting insulins helps you to cut cost and manage better
CGM TRAINING:
Dexcom RESOURCE CENTER

Free Style Libre Resource Center

PUMP AND SENSOR INFORMATION

Important Information About Pump Therapy and Diabetes Care

We want to make sure you have all the information you need to help your child with their diabetes care. Below are some important steps to follow if you’re thinking about insulin pump therapy (IPT).

1. First Visit with the Pediatric Endocrinology Team (PENS)

Before we can talk about using an insulin pump, your child needs to have a team visit with the PENS team at least once. Our team consists of a nurse, dietitian and social worker.

For New Diagnoses: If your child was just diagnosed with diabetes, it is important that your child meet with the team visit within the first 6 months after diagnosis. We’ll also check that your child is no longer in the Honeymoon Phase and has the skills to solve problems safely.

2. Wearing the Continuous Glucose Monitor (CGM)

To use an insulin pump successfully in automation, your child must wear their CGM at least 90% of the time. This helps the pump work correctly and keep blood sugar levels in check.

3. Psychological and Medication Changes

If your child has recently stayed in the hospital for mental health concerns or had any changes in their psychiatric medications, they need to get approval from their therapist and have an evaluation by the PENS team social worker. This helps make sure your child is ready for the insulin pump.

4. Understanding Pump Notifications

You or your child needs to be able to read and understand pump alarms and notifications and know what to do when they go off. This is important to keep them safe while using the pump.

5. Training for All Primary Caregivers

It’s important that all primary caregivers (at least one from each household) attends pump training classes. This ensures that all caregivers know how to use the insulin pump and take care of your child’s diabetes properly.

6. Help with Appointments

If your family has trouble attending the PENS team or Pediatric Endocrinology (CEDE) appointments, a social worker will work with you to find ways to get the support you need and make sure your child can continue getting care.

Thank You for Working with Us

Thank you for reading through these important steps! Following these guidelines will help us make sure your child gets the best care possible. If you have any questions, please feel free to reach out to our team.

Your Pediatric Endocrinology Team

Devices: Pumps,Sensors and Smart Pens(Dispositivos: bombas, sensores y bolígrafos inteligentes)

Insulin Pump Program at PENS team and CEDE - The process(Programa de bombas de insulina en el equipo PENS y CEDE - El proceso)

Food Exchanges - American, Hispanic and Indian (Intercambios de alimentos: estadounidense, hispano e indio)

Behavioral Management (Manejo del comportamiento)

Type 1 Diabetes and Exercise (Diabetes tipo 1 y ejercicio)

Other Support for Diabetes (Otro apoyo para la diabetes)

Sackidinfo: Youtube channel with Videos: Helps you to get quick overview for your family members (Sackidinfo: canal de Youtube con videos)

YES2college: Transitioning from school to adults (YES2college: Transición de la escuela a los adultos)

Diabetes Reunion (Reunión de la diabetes)

Common Associations with Type 1 diabetes (Asociaciones comunes con la diabetes tipo 1)

SackidThyroid: About thyroid disease (SackidThyroid: Acerca de la enfermedad de la tiroides)